Stewards of Change Institute (SOCI) is proud to disseminate the Executive Summary of our informed consent-to-share protected data report. In April 2023, SOCI brought together 60 highly accomplished subject-matter experts for a first-of-its-kind Consent Learning Lab in partnership with the Healthcare Information and Management Systems Society (HIMSS) at its annual global conference in Chicago. The Learning Lab was designed to identify the challenges and articulate next steps for improving data sharing, integrating social determinants of health, and enhancing care coordination across sectors. The full report will be available the Week of October 23, during HIMSS Global Health Equity Week.
Project Unify is an advanced, cross-industry and cross-sector development project of Stewards of Change Institute and its National Interoperability Collaborative (NIC).
Our new report focuses on the nuts and bolts of improving consent, such as legal and technical issues.It also explains our open-source proof-of-concept initiative, the Consent Service Utility (CSU). Most importantly, it gives voice to “people with lived expertise,” those in underserved communities who stand to gain the most from progress.
The processes for obtaining, revoking and managing consent are still highly siloed and often paper-based. SOCI has decided to sharply focus its 2022 activities on bringing them into the 21st Century.
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