Resource Center

InterOptimability Resources

Our Resource Center is a virtual library where you can go for a broad range of information relating to interoperability, information-sharing, and the six domains in which NIC primarily works: human and social services, public health, public education, public safety, emergency medical services and health information technology. We have vetted and aggregated numerous studies, guidance documents and other materials, which can be sorted in a variety of ways for easy access and use, and will add resources continually over time. The Resource Center is available to all professionals interested in the subject matter, irrespective of whether they are NIC participants.

To make the Center as robust and beneficial as possible, we welcome recommendations of relevant content that users encounter elsewhere, that they have produced themselves, or that they are already utilizing. Please fill out and submit the form below to provide your suggestions and comments, or send an email to NIC@stewardsofchange.org.

04-08-2019 Report

Tracking Federal Funding to Combat the Opioid Crisis

Despite thorough focus on the drivers of the opioid epidemic, less attention has been placed on federal invesetments and whether or not they are targeting communities most affected and with the highest opioid related deaths. The Bipartisan Policy Center (BPC) presents a comprehensive report which documents 57 federally funded opioid programs in the fiscal years 2017 and 2018. The programs span prevention, treatment and recovery efforts. The objective of this document is to help minimize duplicative efforts and maximize use and efficiency of limited resources. Additionally, five geographically diverse states: Arizona, Louisiana, New Hampshire, Ohio, and Tennessee- whose opioid deaths were 144 percent higher than the national average in 2017, are analyzed to compare how opioid funds are allocated.

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03-14-2019 Report

The Ripple Effect: The Impact of the Opioid Epidemic on Children and Families

The United Hospital Fund, supported by the Millbank Memorial Fund, highlights the impact of the opioid epidemic on children and families. This publication delivers a comprehensive look at the successive waves of loss and trauma experienced by newborns, young children, adolescents, and their families—including a blueprint for meaningful action aimed at public and private agencies and professionals.

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03-05-2019 framework

Preventing Opioid Misuse in the States and Territories: A Public Health Framework for Cross-Sector Leadership

The Association of State and Territorial Health Officials (ASTHO), in collaboration with the National Association of State Alcohol and Drug Abuse Directors (NASADAD), developed the Preventing Opioid Misuse in the States and Territories framework to provide a public health-facilitated approach for states and territories to respond to the nation’s opioid crisis. Used effectively, this tool will help states and territories organize resources and look across their jurisdictions to identify where planning is strong, where there are gaps, and where they can expand collaboration and engage in strategic conversations with partners across sectors to coordinate planning.

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02-11-2019 Report

National Drug Control Strategy: A Report by the Office of National Drug Control Policy

Jim Carroll, the newly sworn-in Director of the White House Office of National Drug Control Policy (ONDCP), released the Administration’s National Drug Control Strategy January 31, 2019, which establishes the President’s priorities for addressing the challenge of drug trafficking and use.

“Our number one goal is to save American lives, and this comprehensive plan reaffirms President Trump’s commitment to addressing the opioid crisis aggressively and in partnership with our partners across the nation. We must be relentless in our efforts to tackle the scourge of addiction that has affected so many families and communities across the United States. The Strategy builds upon our current whole-of-government approach that educates Americans about the dangers of drug abuse, ensures those struggling with addiction get the help they need, and stops the flow of illegal drugs across our borders,” ONDCP Director Jim Carroll said.

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02-11-2019 Agenda

Facilitating out-of-home caregiving through health information technology: survey of informal caregivers’ current practices, interests, and perceived barriers

BACKGROUND: Many patients with chronic conditions are supported by out-of-home informal caregivers-family members, friends, and other individuals who provide care and support without pay-who, if armed with effective consumer health information technology, could inexpensively facilitate their care. OBJECTIVE: We sought to understand caregivers’ use of, interest in, and perceived barriers to health information technology for out-of-home caregiving. METHODS: We conducted 2 sequential Webbased surveys with a national sample of individuals who provide out-of-home caregiving to an adult family member or friend with a chronic illness. We queried respondents about their use of health information technology for out-of-home caregiving and used multivariable regression to investigate caregiver and care-recipient characteristics associated with caregivers’ technology use for caregiving. RESULTS: Among 316 out-of-home caregiver respondents, 34.5% (109/316) reported using health information technology for caregiving activities. The likelihood of a caregiver using technology increased significantly with intensity of caregiving (as measured by number of out-ofhome caregiving activities). Compared with very low intensity caregivers, the adjusted odds ratio (OR) of technology use was 1.88 (95% CI 1.01-3.50) for low intensity caregivers, 2.39 (95% CI 1.11-5.15) for moderate intensity caregivers, and 3.70 (95% CI 1.62-8.45) for high intensity caregivers. Over 70% (149/207) of technology nonusers reported interest in using technology in the future to support caregiving. The most commonly cited barriers to technology use for caregiving were health system privacy rules that restrict access to care-recipients’ health information and lack of familiarity with programs or websites that facilitate out-of-home caregiving. CONCLUSIONS: Health information technology use for out-of-home caregiving is common, especially among individuals who provide more intense caregiving. Health care systems can address the mismatch between caregivers’ interest in and use of technology by modifying privacy policies that impede information exchange.

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02-11-2019 Article

Patient Interest in Sharing Personal Health Record Information: A Web-Based Survey

Background: Electronic personal health record (PHR) systems are proliferating but largely have not realized their potential for enhancing communication among patients and their network of care providers. Objective: To explore preferences about sharing electronic health information among users of the U.S. Department of Veterans Affairs (VA) PHR system, My HealtheVet. Design: Web-based survey of a convenience sample. Setting: My HealtheVet Web site from 7 July through 4 October 2010. Participants: 18 471 users of My HealtheVet. Measurements: Interest in shared PHR access and preferences about who would receive access, the information that would be shared, and the activities that users would delegate. Results: Survey respondents were predominantly men (92%) and aged 50 to 64 years (51%) or 65 years or older (39%); approximately 39% reported poor or fair health status. Almost 4 of 5 respondents (79%) were interested in sharing access to their PHR with someone outside of their health system (62% with a spouse or partner, 23% with a child, 15% with another family member, and 25% with a non-VA health care provider). Among those who selected a family member other than a spouse or partner, 47% lived apart from the specified person. Preferences about degree of access varied on the basis of the type of
information being shared, the type of activity being performed, and the respondent’s relationship with the selected person. Limitations: The survey completion rate was 40.8%. Results might not be generalizable to all My HealtheVet users. Conclusion: In a large survey of PHR users in the VA system, most respondents were interested in sharing access to their electronic health information with caregivers and non-VA providers. Existing and evolving PHR systems should explore secure mechanisms for shared PHR access to improve information exchange among patients and the multiple persons involved in their health care. Primary Funding Source: Veterans Health Administration and The Robert Wood Johnson Foundation Clinical Scholars Program.

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