Category: Responsible Data Sharing

November 15, 2021

As I started writing this blog, I thought a lot about how to deliver the following message without sounding hyperbolic or boastful: The report that Stewards of Change Institute (SOCI) has just published, titled “Modernizing Consent to Advance Health and Equity,” is potentially a very big deal. Then I read a quote from Karen DeSalvo, Google’s Chief Health Officer, and thought I couldn’t explain it any better. So here’s what she said in September 2021, at the 35th Annual Plenary of the international Health Level 7 (HL7) data-exchange standards organization.  

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Optimizing Care Coordination by Creating a Modern ‘Consent-to-Share Utility’

Evidence clearly shows that the routine, secure sharing of relevant personal information among the many programs and systems that serve vulnerable children (education, healthcare, behavioral health, child welfare, social services, juvenile justice, etc.) greatly enhances care coordination, thereby systemically and meaningfully improving outcomes for this underserved population. But current processes for providing informed consent to […]

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